Designed in partnership with
Chester ME Self-Help Group
Why this started
Built from lived experience and shaped by the community.
ME/CFS Support came from experiencing how isolating this condition can feel, and how difficult it is to find useful, reliable support in one place.
Why it matters
Built around the gap people are left to navigate.
Spending countless hours searching through research papers, Facebook discussions, videos, and personal experiences made it obvious how fragmented and difficult this information is to navigate, especially with limited energy and cognitive capacity.
The aim of ME/CFS Support is to build a more structured and useful place where members can find relevant discussions, easier-to-follow research summaries, practical experiences, and ongoing support without needing to piece everything together alone.
What shapes the platform
What we do differently.
Lived experience matters
This is being shaped by the reality of living with illness day to day, not just by theory.
Adjustment takes time
Learning to live at a different pace can be difficult, and it helps to hear from people who understand that shift.
The kind of support I wanted
The goal is not just to create another online community, but to build a structured support platform that becomes more useful over time as members contribute experiences, discussions, research insights, and feedback together.
Help shape what this becomes
ME/CFS Support is being built around what members say is most useful: clearer information, lower-effort access, and support that feels easier to return to.