Designed in partnership with
Chester ME Self-Help Group
Online community for ME/CFS and Long COVID
Personalised support and research for those with ME/CFS and Long COVID.
ME/CFS Support helps you find discussions, practical experiences, and research insights that are personalised to your situation, without the noise, overload, or endless searching on traditional platforms.
Built with lived experience in mind to make content easier to find and digest.
Community preview
Example thread
A structured way to follow discussions, questions, and research without information overload.
What has helped you notice PEM sooner?
Summary first
Thread summaries help you quickly decide whether something feels relevant before spending more energy reading further.
Structured discussions
Questions, replies, and shared experiences are organised so conversations are easier to follow.
Our overviews help you understand the thread before deciding whether to spend more energy on it.
Open & honest community
An open space to share, discuss and listen.
Weekly support group calls
Regular time to talk, share advice, or simply listen in.
Summaries tailored to you
See the key points before opening a long thread.
Clear & personalised layout
Designed to reduce extra mental or physical load.
Why it exists
When support is hard to find.
Traditional healthcare services matter, but support often comes as appointments rather than the ongoing, day-to-day help people need. Many are left navigating daily life largely on their own, searching through information that is scattered, inconsistent, and hard to relate to.
ME/CFS Support exists to make useful discussions, lived experience, and research easier to find, easier to follow, and more relevant to each individual member.
Scattered, hard-to-use information
Helpful information is often spread across different places and difficult to piece together into something usable.
Hard to find what applies to you
Even useful advice can be hard to act on when you cannot tell whether it fits your symptoms, questions, or stage of illness.
Left to figure things out alone
Many people want shared experience and support to know they're not alone, not just more time passing while they hope things improve.
Inside the community
What you'll find inside.
The community is being shaped to help people find what matters more quickly, take part when it feels right, and find a space to relate and connect.
Member discussions
Real conversations about symptoms, pacing, day-to-day life, and what people have tried.
Resource library
Research papers are converted into shorter summaries with key takeaways, symptom relevance, limitations, and member discussion.
Summaries at the top of every thread
A brief overview first, so you can tell whether a conversation is worth your energy.
Relevant topics for your experience
Your feed adapts around your symptoms, interests, and the subjects most relevant to you.
Weekly group calls
A regular space for people who want live conversation, shared reflection, or quiet company.
Alternative therapy discussions
Space to compare and share lived experiences around supplements, pacing strategies, therapies, and symptom management approaches.
How it works
Simple from the start.
The aim is to help you settle in quickly and find conversations that feel relevant.
Join
Join and start exploring our open community.
Complete a short profile
Share a little about your experience so the right topics are easier to find.
Find relevant conversations and support
Explore personalised discussions, simplified research summaries, and structured support at your own pace.
Community preview
A clearer way to follow discussion.
Discussion threads are organised to make them easier to scan, revisit, and follow over time.
What has helped you spot post-exertional malaise earlier?
Members discuss pacing cues, warning signs, and habits that can make recovery feel a little less uncertain.
Pacing
PEM
Daily life
Exploring acupuncture & supplementation to assist in recovery
A member shares what they noticed after trying acupuncture and a few supplements, with others adding what felt worthwhile and what they approached cautiously.
Acupuncture
Supplements
Alternative therapies
Living with uncertainty without feeling alone in it
A group conversation for people who want a place to reflect, listen, and compare experience.
Group call
Emotional support
Community
What we have planned
How the platform will evolve over time.
The community is starting simple, but the aim is to keep building practical support around what people actually need in daily life. These are some initial ideas to add once demand increases, and they will be shaped by what members say would help the most.
Connections to trusted local providers
Over time, we hope to help members find practical day-to-day support, from cleaners to other useful local services, with trusted recommendations and possible member discounts.
Discounts for therapy and support services
We would like to explore access to alternative services people may want to try, by partnering with practioners who in return will offer discounts for community members.
Guest speakers with useful insight
That could include people with expertise in the ME/CFS field or lived experience who can offer practical sessions and advice to members.
Connections to your local health services
The aim is to bridge the gap between the limited traditional health services and the practical support people often need day to day, and for the NHS to reccomend us directly.
View the roadmap
See how the community is planned to develop as membership grows.
Share your ideas
Tell us what support, services, or features would help most & view other members suggestions.
Get started
Join the platform
Sign up to join our comminity and help shape the future of our platform.